NICE has published its guideline on the care and support needs of adults with cerebral palsy.
It aims to help local and regional services provide consistent clear pathways of clinical and social care and sets out what’s needed to tackle the variation that exists in the provision of specific services for adults with cerebral palsy.
In Frontline Magazine (6th February 2019 issue) Jenny Tinkler, chair of the Association of Chartered Physiotherapists for People with a Learning Disability (ACPPLD), said: ‘The acknowledgement that adults with cerebral palsy will require ongoing access to services that include MDT reassessments, and that these will be at different stages in the person’s life to ensure that changing clinical and functional needs are met is welcome.’ The professional network was pleased at the importance given to physical activity for adults with cerebral palsy in maintaining their level of physical fitness, physical and mental wellbeing, and the role that physiotherapy has in this. ‘It is also good to note the acknowledgement of the role of the physiotherapist in prophylactic chest care with the recommendation to refer to specialist respiratory services for ongoing monitoring,’ said Dr Tinkler. ‘However, we would like to have seen more promotion of the use of 24-hour postural management strategies to manage muscle tone, posture and musculoskeletal changes.’
The new guideline can be accessed by following the link below:
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